Amostra

Of the 580 family members who completed the survey, 26 reported that the person with DD did not live at home and were removed from the study. Five family members who reported the person with a DD was less than 18 years of age were also re moved. Finally, 2 surveys were removed because more than 50% of the data was missing. Data from the remaining 547 family members were included in this study. Gender of the consumer, 2(1, N 540) 1.15, did not differ between respondents and nonrespondents. Race/ethnicity could not be compared because of differences in definitions of the variable between the WSDDD administrative data and the survey. Respondents differed from nonrespondents with respect to age of the consum er, t(546) 2.84, p respondent families (M .005. Consumers in non 31.22) were on average 1 year older than those in the respondent families (M 29.96). Almost 91% of the family members reported that they were the parent of the person with DD. Other family members responding included siblings, aunts, grandmothers, and sisters-in-law. Most indi cated that they were the primary caregiver for the person with DD (97%) and the legal guardian (63%). Ninety-five percent of the consumers had intellectual disabilities (IDs) and 27% had a com munication disorder. See Table 1 for more demo graphic information.1